A Healing Grace
Sawyer’s journey began Thursday, August 6th when he started throwing up after every meal/ snack he ate. I thought it was something he ate but as the days went on, I began to second guessed myself. After giving him very basic foods for several days, I decided it was time to take him to the pediatrician. He had a Monday appointment where he was tested for Covid (negative result came back) The doctor assumed it was a GI bug. After this appointment, Sawyer continued to throw up and complain of lower right abdominal pain. He never ran fever or displayed signs of sickness in any fashion except when eating. On Wednesday after a week of not being able to eat, I took him to MUSC Children’s Hospital. It was there that he was diagnosed with having a Small Bowel Intussusception. He had to endure a second Covid test (In a matter of 3 days) before he could have surgery where they removed 10cm of his small intestine, a mass and the neighboring lymph node. We remained in the hospital for 5 days.
Our fears were confirmed a few days later when Sawyer was diagnosed with Diffuse Large B Cell Lymphoma. He was scheduled and had a bilateral bone marrow aspiration, lumbar puncture, CT scan of neck and chest, and PET scan. All tests came back as negative- which we feel grateful and blessed! Sawyer is classified as having stage 2 and will need two rounds of chemo.
On September 1st Sawyer had his port placed and chemo began September 2nd. He remained in the hospital until September 5th when most of his chemo ended. On the 8th he was given his final dose of chemo for this round in clinic. Starting the 9th- the 18th he is to be given a daily injection at home.
If all goes well, his second round of chemo will begin September 25th.
We have been surrounded with love from family and friends during this journey. What I struggle with mostly is making sure Sawyer’s brother Charlie is not feeling left out. Charlie is 12 and I see the look on his face when his brother gets cards and packages and he is left out. I know this is not something major, but that seems to be my only concern or issue at this time. On a side note- we have lost two beloved family dogs since Sawyer’s first hospital visit. One to old age and the second to Cancer (which the boys are not aware of because of our current situation). This is been an added struggle that we have been faced with.